Recently I’ve been thinking about my first flare and whether there were any signs or some kind of signal that could have foretold the pain that I was soon going to be in.
Pretty sure a flare feels exactly like being trampled by a T-Rex.
And I’m starting to think that (for me mind you) my immune system whacked out much sooner that I initially realized. While I was initially diagnosed with Lupus and APS in the Spring/Early Summer of 2010, my joints and legs had been painful since the very beginning of January. I waited several months before seeing a doctor about my joints for two reason; fear of what they would tell me and a lack of insurance.
Looking back, I think my immune system might have been trying to tell me something was wrong much earlier than that. The Spring/Summer before my diagnosis I had was dealing with a horrible bout of multiple UTIs AND yeast infections. Within a 5 to 6 month period was treated for 5 UTIs and 2 yeast infections.
Now maybe you’re thinking – “So what? I’ve had a yeast infection before” – but I had NEVER had either of these two things. A 24 year who suddenly has multiple UTIs and yeast infections with no history of it before then. It was weird. Not only that – the medicine didn’t seem to work. I went through several different antibiotics in an attempt to find the one that would kill the germs. A few months after I got those issues under control, I was hit with the fatigue. At the time I didn’t think much about it. I had just graduated from graduate school and was searching for a full time position while working at a local store. I was busy and thought it was just stress. But it got worse. To the point where I would come home and beg my boyfriend at the time to just go to bed instead of going out (my exhaustion eventually caused the boyfriend and I to break up (among other things), thank god). And by the end of the winter and I was in a full blown flare.
Hindsight is 20/20 – at the time, I had no idea that all these crazy things happen might be related to each other (technically, I still don’t but it makes sense to me). Skip forward a few years, and low and behold – it’s happening again. This Spring/Summer I’ve been dealing with multiple sinus and ear infections (and multiple antibiotics) and now soul crushing fatigue (and oddly enough, insomnia). Maybe I’m wrong. Hell, I HOPE I’m wrong. I don’t want to go through the pain of another full blown flare – mini flares are bad enough.