Owie · Pyogenic granuloma

Fat Lip Girl

So it’s been a while since I wrote because I’ve been dealing with some health issues. Surprise, right!? 

Back in April I noticed a smallish blue/purple bump forming on my lip. It didn’t hurt and I thought it was a bruise at first. But it didn’t go away and by July I decided that I need to see some one about it. My primary care doctor recommended a dermatologist… A few weeks later the dermatologist biopsied it and the results came back benign but the process of collecting the tissue sample inflamed the area and it began to grow and bleed almost constantly. 

Yea, its gross but at least it’s not bleeding in this pic.

I journeyed another hour away to see another doctor and was told that it had progressed into a pyogenic granuloma. But since it was in the middle of my face, he felt that I should see a plastic surgeon for the removal. 

So after 4 doctors visits and almost 6 months this is what I’m left with.  

Sure… this is better.

Hopefully the healing process will go well and it won’t return. A pyogenic granuloma is a inflammation and irregular growth of vessels and capillaries in a localized area. They don’t currently know what causes them (although they tend to be found commonly in pregnant women – and NO! I’m not!) I’m curious if it could have any link to my Lupus or APS…. 

Owie · Work

Day Two at Home

Well, today is my second day staying home from work. Yesterday the pain was located primarily in my legs – achy and painful to touch is suspected that it had more to do with my APS than with my Lupus.

But this morning I woke up barely able to get out of bed. The pain is now in my hands and back – different this time. Now I’m sure it’s the Lupus. :-/

Fortunately I’m heading to the rhuemy on Monday for my routine maintenance checkup. So the blood work will probably be able to tell me if I’m going into a flare.



Last Friday I began to experience horrible back pain along with some minor abdomen discomfort. At first I suspected my newly inserted IUD but after a quick appointment with my ObGyn she said everything looked normal. That didn’t explain the back pain or the constant urge to use the restroom… Friday night was the last straw – while sitting in class I could barely pay attention. Eventually I had to leave, opting to go to the Emergency Care Clinic and meet my mom there. While I was signing in she arrived and promptly told me that we were going to the ER (apparently I looked like shit). A CT scan, 6 morphine shots later – the doctor has decided that I have a kidney stone working its way down from my kidney to my bladder. They pumped me full of Toradol and sent me home with a strainer.

That was three days ago and I still don’t think I’ve passed anything and the constant urge to pee is still there. Beginning to worry that this could cause damage to my system.

Anybody have any suggestions on how to deal with kidney stones?

Joint pain · Lupus · Owie

What then?

Well, my “experiment” has quickly gone awry. After a day and a half with no Plaquenil my severe joint pain has come back. A part of me was curious if it was helping or if I had just gotten better (somewhere along the line hoping that the lupus diagnosis was incorrect)… But now that the pain is back with a vengeance (despite being in a laboratory confirmed “remission”) I realize that I DID feel better because of the medicine and that I DO need them.

I’m not one who likes to be on medicine – especially medicine I’m not sure I need. It’s just the way I was raised – my mother is the same way- when I was young and I had a headache, I would go as long as possible with pain medication hoping that it would clear up on it’s own. So being dependent on medication now is difficult for me.

And even more distressing – what if Plaquenil should ever stop working for me? What then?

Antiphospholipid Syndrome · Joint pain · Lupus · Owie


Please don’t let this be a flare.

I woke up this morning feeling achy – and things just got worse from there. My job isn’t very physical and sitting at a computer for the majority of the day doesn’t bode well for my circulation. About half way through the day my legs began to cramp up – an odd sensation, painful yet almost like they’re falling asleep. At the same time my joints – in my hands, hips, ankles and toes are stiff and hard to move.

I wonder if any of this has anything to do with the fact I got a flu shot yesterday. Going to bed now – hopefully when I wake up tomorrow I’ll feel better.


Flu shots hurt

Well it’s that time of year again. The masses line up to get willingly stabbed in the arm and injected with a virus. Ok, a dead virus but whatever… Yes, it’s flu shot season and my arm hurts.

Here in my town they have even set up a drive through station where all the members in your car can drive through, stick their arms out the window and be done with it. Medicine on the go. And apparently it’s very popular too. As we were waiting our turn in the queue, I was chatting with one of the assistants – apparently they had over 700 cars the first day. Not a bad number – and it’s good to know that other members of the community are willing to go through a little prick of pain to protect themselves and others.

As someone with a compromised immune system (due to medications) I appreciate it when I DON’T have to be constantly afraid of getting ill. Although I was a little surprised to note that people who have diagnosed with Guillain-Barre syndrome cannot get a flu shot. Guillain-Barre is a serious disorder that occurs when the body’s immune system mistakenly attacks part of the nervous system. This leads to nerve inflammation that causes muscle weakness.

Lupus is also an immune system disorder – why is it we can get the flu shot (actually encouraged to get them) and those who have Guillain-Barre can not?