Day 2

Day after surgery. Already looking better! Kinda surprised some I don’t heal very fast at all! One pleasant side effect – if you look past the horrible cut – Angelina Jolie lips. At least until the swelling goes down.  



Right to the Ribs

… And not the delicious finger licking kind either.  

Did you ever wake up in the morning and feel like Bruce Lee just roundhouse kicked you in the ribs. 


We’re supposed to be getting some bad weather in the next few days and Mother Nature thinks it’s a great idea to make me a human pain barometer every time! 

Hope you all are feeling better than this! 


Time Crunch

So several months ago I decided that I was going to start reblogging again. Good idea – bad timing. I work full time in a field that every 18 months has an “outage” period where full time staff work gruelling hours. Usually this crazy work period only last for about 30 to 60 days, but during that time I work somewhere between 70 and 80 hours a week.

Needless to say it was a bad time to try to start blogging again.

I know that there are a lot of people with Lupus that have symptoms that are so severe that working full-time is impossible, so I am grateful to be able to handle working full time.  But the 70-80 hours weeks take it out of me.

The extended hours have been over for a few weeks and my body is still trying to catch up – with sleep and rest. Right now I’m stuck at home because of a flare.  This last weekend a huge storm front moved through the area and my joints decided to rebel. Does anyone else have mini flares during severe weather season?


Busy life ( originally posted May 2013)

Hey! It’s been a long time since I’ve posted anything… Here’s why-


This last spring was my last semester. So I can finally say that I have two masters degrees. This one in Library Sciences and the first in Art History. After I first got sick, I got really depressed. I was sure that I was never going to be able to enjoy a full life – no marriage, no job, no prospects.

But I’m stubborn – so the first thing I did was want to prove my own depression wrong. I’ve always loved libraries and before I went to get my Art History degree, I had considered getting a library degree. I choose not to because I wanted to leave my hometown (there is a good library school in my hometown).

So to back to the story – to prove myself wrong I decided to go back to grad school. And this time not only did I go to school full time but I also worked full time. SUCK IT LUPUS.

Not the only thing left to accomplish is to find a job. Unfortunately that is going to be the hardest part. My SO has s very good job where we are at so I have to limit my search to a certain area.

Oh well – one more goal!



Well its been a long time since I’ve had to write this but…. I’m in a flare. Some times I talk about flare as though I can’t tell, or maybe I’m unsure whether or not it’s just the flu or something. Well this one I am positive. My joints haven’t been this swollen since I was first diagnosed.  That, along with the swelling in my legs – it has been kind of a bad last few weeks. At first I was ok to blame the weather, living in Kansas means you have deal with the crazy bi-polar weather. Yesterday it was sunny and 75… but oh look there is a tornado watch this morning followed by thunder snow and a possible blizzard. *sigh* Not good for someone with joint problems. 

But after several weeks of these symptoms I feel comfortable in saying – it’s not just the weather. I’m in a flare. 

Heading to the Rheumy in a few weeks – the soonest I can get my crazy schedule and her appointment calendar to mesh – but in the meantime, it’s lots of rest and keeping my feet elevated. I’m not really concerned about the joint pain… it’s painful, but Lupus joint pain usually isn’t damaging to the joints. Inflammation and pain, yes. Lasting damage to the joints, No. I’m more concerned with the swollen legs – they been swollen for a couple weeks pretty consistently (raising the eases the pain of the swelling, but usually by the end of the day it is back).  I’m worried that this might be a signal that I’m have blood clotting issues again. :-/


Dizziness and Meds

. Since last Wednesday, I’ve had often and on bouts of dizziness and vertigo. I have no idea what it could be…. It has actually been more of a nuisance than anything, yesterday was actually worrying. I got so dizzy that at times I thought I was going to have to lay down… while I was at work. AND to top it all off, driving seemed to be hazardous. Today has been better, although the dizziness isn’t completely gone it is back to just being annoying.

Also – bad time I know, since I’m battling the dizziness – but I’ve decided to see what I would feel like off the Plaquenil. I KNOW, I KNOW. Right now I am on two 200 mg doses of Plaquenil daily and I am not having any pain in my joints. I want to see if that is because of the medicine or if perhaps JUST MAYBE, I’ve gotten better. I know it’s wishful thinking but I would like to not be dependent on medication for the rest of my life and if I do get better how will I know if I’m on a meds?!

So today is technically day three without my Plaquenil and I’ve noticed some possible stiffening of my joints but so far no pain.